¥ Genetic and Rare
Conditions Site, Medical Genetics, University of Kansas Medical Center
Rainbow
Boulevard, Kansas City, KS 66160
913-588-6043
¥ Genetic Alliance
4301
Connecticut Ave. #404, Washington, DC 20008-2304
(202) 966-5557, (202)
966-8553 fax, (800) 336-GENE (helpline only)
¥ Gene-Tests-Gene Clinics
9725
Third Ave NE, Seattle, WA, 98115
206-522-3465, fax
206-522-3594
¥ March of Dimes Birth
Defects Foundation
1275
Mamaroneck Ave., White Plains, NY 10605
888-663-4637,
914-428-7100 v/TTY, fax 914-428-8203
¥ National Center on Birth
Defects and Developmental Disabilities
Centers
for Disease Control and Prevention, 770-488-7150
¥ National Organization for
Rare Disorders (NORD)
PO
Box 1968, Danbury, CT 06813
800-999-6673, 203-746-6518, TTY 203-746-6927, fax 203-746-6481